so it was time to get ready for the stem cell transplant.
Got my lovely room, 9205 duke North. The first day I had a BNU infusion, wich is some real interesting stuff. It is so unstatble That it is kept in a dark temp. controlled vault. I can't be mixed with Sodium 
cloride, or gloucose. It is mixed with ethanol. The dear girl that administered it was wearing what amounts to a hazmat suit. All of that makes one take pause and ponder the safety of all this.
Once you hae been infused with the racing fuel cocktail, it made the tissues of my upper body feel like they were on fire on a cellullar level.
I had to them keep putting cold compressess on my to keep from losing my mind. The really bad part of it all is you don't even get a buzz out of it.
After all that tourture the next day is a free day. They did check on me about every thirty minutes I guess to make sure I was still alive. Other wise it was an exciting day of walking the halls, and watching the cable system they have. I did have the ipod , wich was helpful.
03/31/07
Today is vp16 day. That I have before so it is no big deal; that was administered by new nurse Kerri.
03/31/07
Had no blood peassure last night and no sleep.
04/01/07
Nothing to report for once.
Simple efosphomide infusion
04/02/07
Get out of in patient clinic! Yea
One sobering aspect of this stemm cell thing is that it is not a sure thing or easy. The Gentleman in the next room to me died the Saturday after I left The Isolation floor.
4/3/07
Today is day zero. The day of my transplant. So here I sit in my little infusion room , waiting for the lovely nurse Lisa to accumulate all the instruments and accoutraments for my stemming. So, I be sitting here chillin. Peggy the RN practioner came to splain some things to me; I like her, she is a hoot.
Finally nurse Lisa returns and proceeds to give me some great stemming. A voice like butta she has, OY!. She could probably talk me into anything.
04/04/07
New word for today misconstrudle. Means the same theing as misconstru. Some thing my care giver came up with. I have a new P.A. Brent. Looks like he is a 12 year old super geek, but his sure enough on the ball.
i have been givena bird house project to work on to help pass the time while at the clinic. I will have to ask if I may bring one of my cannon projects to work on.
04/05/07
My lap top needs an adjustment from a 5lb hammer, it is really getting on my nerves.To day I needed some magnessium but I am recovering famously other wise.
As far as a project to amuse myseolf in clinic, I am told I may not build a connon, or bring ball powder, or any other acoutrament to go with such. Amy did say we could discuss bb guns though.
04/06/07
Not much going on today. I am snoozing in the chair waiting for super geek Master Brent to show. Brent has a baby! 12 year old looking Brent has a super geek baby! I would have never thunk it.
Couldn't get a cannon modle in a timely fashion, so that is off for now. It would be interesting to calculate how much of a charge you need to luanch a one inch ball across the atrium into the water fixture. I could go into the atrium with the scale motor and yell out you will be assimilated, "BOOM". Resistance is futile! Of course they may haul me off to the loony bin after that.
04/07/07
The batteries died in my infusion pump at four am this morning. Had to send the nurse out for fresh ones so it would stop beeping!
04/08/07
Today they said I would get plates. I really hope they are royal dalton. I always wanted a set of those, but then I heard plattellettes, thats different. and not whatI wanted.
04/09/07
Eating is difficult, my blood preassure is low, very lethargic.
04/10/07
I go for my check up and my blood preassure is 80 over 40. My heart rate is so rapid they can only guestimate it at 188. They work on me with drugs and I.V. fluids to try to get it back up and slow my heart down, but it doesn't work. They ship me over to medical ICU wich I refer to as the dungeon. There I am told after working on my for 5 more hour they are going to have to shock me. She says we will sedate you because it hurts. Okay I'm all for that, but I think she just shot me up with elctrolites and flipped the switch. Fuck me running did that hurt. It helped though. By that time they had me on so many drugs I had reached a psychotic state, and my breathing had almost stopped. The put me in a comma and hooked me up to a respirator. Mean while a team of psychiatrits are tying to figure out how to get me out of the psychotic state. In this dungeon the slap a foley on me and a rectal tube neither done in a very gentle and loving manner, and ignoring everything I tell them about my colon problem. They csertainly did enjoy re-inserting the anal tube over and over. I think they enjoyed my misery.
Don't know the date
Finally I am released from the dungeon and sent back up to the bone marrow floor. 2 days after that I am allowed to leave the hospital. From there I go to an appartment where you must stay wthinn 5 miles of the clinic incase of something going wrong. Other than that I have just suffered the usual, nausea diarreah, lack of strenght ect, that every one else does. The big thing is you do next to nothing for almost the next year. You can't garden, you can't be in crowds without a mask, you can pet you pets but they can;t lick you or kiss you, or sleep with you. your living in a bubble without the physical bubble so to speak. every time you touch something you have to sanitize your hands.
So it has been a fun trip. Now I sit at home play with the computer, watch tv and read a lot, and that's about it.
From now on I will keep my journal up dated in a more timely fashion.
I did get my cancer gun back. it is engraved with the date of my diagnoses, and has a space for my 5 year "cure"date, or the date of my untimely demise. I know it is a bad picture but it is the one in the front.
